I appreciate all the love and support that you all have been giving us! If one good thing has come out of this, it's been realizing how many people really care about our little family.
I started this blog so I could keep everyone updated on Jon's condition. I wish I had the time to update everyone personally, but between a million doctors visits; trying to spend quality time together; and maintaining my employment... I just don't have enough hours in the day!
So let me start from the beginning. About 6 weeks ago, Jon was diagnosed with multiple blood clots in his lungs and pulmonary hypertension. He began to take blood thinners to take care of the clots, but he gradually became worse until he couldn't even make it up a flight of stairs without becoming totally winded and completely exhausted. On Monday December 27th Jon went to the hospital in an ambulance and was diagnosed with level III heart failure. He stayed at WakeMed in Cary for a few days before transferring to Duke University Hospital for more specialized care. His tests have shown that he not only has blood clots in his arteries, he also has scar tissue that has formed around the clots. He came home on Friday.
On Tuesday he will have a few more test (including a hearth cath) to determine if he needs the pulmonary thromboendarterectomy surgery. It is looking like he will probably need the surgery and the tests on Tuesday are pretty much for the doctors to dot their I's and cross their T's. He will likely go in for surgery on Thursday or Friday. After surgery, he will be in the hospital for 2 weeks-1 month, and then needing to rest at home for about 1 month after that.
Jon's doctors don't know what is causing the blood clots, and this surgery is only going to clear out existing blood clots and scar tissue. After his surgery, his doctors will begin to determine how to prevent future clots and scar tissue from forming.
Jon's mom flew out last week and will be here as long as we need her. We can't be more thankful for her being here!!! We are also thankful for the sacrifices that her family has made for her to come and stay with us.
Jon may stay in the hospital between his tests on Tuesday and when he goes in for surgery, but he also could come home for a day. My bet is that he will stay in the hospital because it takes forever for anything to happen at the hospital... and I seriously doubt they will actually get him discharged from the hospital before surgery.
That's all for now... I'll post more on Tuesday when we know if he is going to have the surgery or not.
I've been following your posts on facebook and we definately have you in our prayers. We were telling Abraham that his friend Jonathan was sick and had to go to the hospital and he immediately asked, "Is his hatchback okay?". Let us know if there is anything we can do!
ReplyDeleteI hope everything goes well and they're able to figure out what's causing the clots. Let us know if there is anything we can do.
ReplyDeleteSarah, I am finally able to have internet and catch up on all the details now since we have been away since Jan. 2nd. Great idea putting this all to a blog- it IS impossible to update everyone about what's up in a situation like this... but in a way that's such a blessing, like you said, because so many people care about you two. So many people. Thank you for taking the time to post all of this and know that you are Jon are in our thoughts and prayers.
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